Navigate and Thrive with Parkinson’s
Welcome to your starter kit. This journey brings many questions, and we’re here to help you navigate it. From work and lifestyle to home safety and family conversations, you’ll find resources and expert insights to guide you through the next steps with confidence.
Step Into Action
Let’s start at the very beginning, a very good place to start. Browse the categories below for resources recommended by the wider PD community.
Step One: Health & Mindset
Begin your journey by gaining clarity about Parkinson’s and focusing on your overall health and mindset. Discover coping strategies, holistic techniques, and resources to support emotional well-being, resilience, and a positive outlook.
7 Things People Newly Diagnosed with Parkinson’s Should Know
If you or your loved one has recently been diagnosed with Parkinson’s disease (PD), it is normal to feel overwhelmed. Our Newly Diagnosed guide is designed to help people with Parkinson’s and their loved ones who are beginning their PD journey.
5 Honest Reactions to a Parkinson’s Diagnosis
This article outlines five common and honest reactions people have after receiving the life-changing news that they now must adapt to a new life with Parkinson’s disease (PD).
[Watch] Exercise and Parkinson's Video
This video discusses the benefits of physical activity, gives tips on starting and maintaining a workout regimen, and covers the latest research on exercise’s effect on PD.
Building Well-Being Practices into Everyday Life with Parkinson’s
Parkinson’s disease (PD) affects everyone differently and changes over time. Symptoms can be hard to predict and may fluctuate depending on factors like medication, stress and sleep. The pressure to adapt to changing physical abilities, as well as mood symptoms, such as depression, anxiety and apathy, may be overwhelming at times and lead to feelings of hopelessness. Whether you feel this way and are searching for a way forward or just looking to boost your overall well-being, there are everyday strategies that can help.
You’ve Been Diagnosed with Parkinson’s, Now What?
If you’ve been diagnosed with Parkinson’s, you may be feeling overwhelmed, devastated, angry, confused or all of the above. We felt the same way when we heard our doctors say, “You have Parkinson’s.”
[Watch] Nutrition and Parkinson’s with Kristin Gustashaw
In this Live Well Today webinar, Davis Phinney Foundation Executive Director Polly Dawkins talks with Kristin Gustashaw, a registered dietician at Rush University Medical Center, about nutrition and Parkinson’s. They discuss general dietary guidance for people with Parkinson’s, the effects of alcohol, dairy and fiber, and a new perspective on protein-levodopa interactions.
Step Two: Family
Find compassionate guidance on sharing your diagnosis with loved ones and starting important conversations. Learn when and how to involve care partners and practical tips for creating a safer, more supportive home environment.
How to Communicate What Parkinson’s Is to Friends and Family
Discover simple, heartfelt ways to share your experience and help them truly understand your journey.
Sharing Your Diagnosis
Sharing your Parkinson’s diagnosis can strengthen your support system. Learn how to communicate with confidence and build deeper connections.
Step Three: Lifestyle
Explore how to maintain your quality of life with Parkinson’s by staying active, nourished, and connected. Get practical advice on communicating with friends, adapting daily routines, embracing exercise and wellness strategies, and making nutrition choices that support your health and manage symptoms.
Parkinson's and Your Social Life: Advice from Our Community
Stay connected with Parkinson’s by finding friends who understand your journey. Simple steps like letting others know your needs and planning low-key activities can keep your social life thriving.
[Watch] Your First Year with Parkinson's: Practical Tips for the Road Ahead
Just diagnosed with Parkinson’s? Find trusted resources and practical tips to help you take control and start your journey with confidence.
Getting Outside Help
This article for the care partner offers practical guidance on identifying the right time for additional support and exploring available resources to ensure quality care for your loved one with Parkinson’s.
Step Four: Work & Financial Planning
Find practical advice on discussing Parkinson’s with your employer and coworkers, navigating benefits and insurance, and planning financially for the future. Explore career tips for adapting your work life or making changes when needed.
How to Work Full Time & Live Well with Parkinson’s
This article shares real tips to help you manage symptoms, communicate at work, and thrive every day.
Step Five: Health Insights
Access expert guidance and clear explanations to help you better understand Parkinson’s and your care options. Find valuable information on symptoms, treatments, and available support programs to stay informed and empowered.
Ask the MD: Advanced Practice Providers and Your Parkinson’s Care
Learn about the different partners in your Parkinson’s care team and how they can help provide you with the best support for your PD journey.
[Watch] What’s the Difference between Dystonia and Dyskinesia?
Confused about the difference between dystonia and dyskinesia? In this insightful video, Dr. Rachel Dolhun, a movement disorder specialist, breaks down these common movement symptoms: explaining their causes, how medication can influence them, and strategies for effective management.
What Off, On and Other Common Parkinson’s Terms Mean
This video from Dr. Rachel Dolhun explains common Parkinson’s terms like “off,” “on,” dyskinesia, and dystonia to help you better understand your symptoms and treatment.
Step Six: Continuing Education
Expand your knowledge and stay informed with curated book recommendations, podcasts, and workshops about Parkinson’s. Access key resources, major websites, and links to events, lectures, and learning archives to support your ongoing journey.
Coming Soon.
More info coming soon
Step Seven: Tools & Resources
Discover helpful apps, devices, and products recommended by our community to support movement, medication management, and daily living. Access practical checklists and resources designed to make managing your life easier and more manageable.
[Download} Davis Phinney Newly Diagnosed Checklist
Find out what you can do every day, every week, every month and every year to live well with Parkinson’s with this free download from Davis Phinney’s website.
[Download} Davis Phinney Every Victory Counts Manual
Order the Every Victory Counts manual, the Care Partner manual, or both. Both manuals are available in print and digital formats. Manuals include insights from more than 50 Parkinson’s experts, including physicians, therapists, and scientists who share cutting edge research, strategies, and ideas for living well with Parkinson’s.
Step Eight: Community Inspiration
Connect with stories from others who share your journey and find encouragement through community contributions. Explore support groups, classes, and resources that bring people together for strength and inspiration.
PWF's Community Contributions: A Space for Your Art to Shine
We’re thrilled to announce our monthly Community Contributions, a new way for you to share your talents with the PWF family and beyond.
PWF's My Story Feature: Sharing the Strength of Our Community
Our “My Story” series will highlight the voices and experiences of individuals living with Parkinson’s. These personal stories, shared in written or video format, will celebrate the resilience and strength of our community.
Step Nine: Y.O.P.D
Find resources and support designed for younger adults navigating their Parkinson’s journey. Connect, learn, and thrive with others who understand.
How to Respond to a Young Onset Parkinson’s Diagnosis
The article offers guidance on how to cope with a young-onset Parkinson’s diagnosis.
Parkinson’s 101
We Answer Your Top Parkinson’s Questions
What is Parkinson’s?
Parkinson’s disease is a progressive neurodegenerative disorder characterized by a loss of dopamine producing cells in the brain. It primarily affects older adults with men at a higher risk than females, but is also found in younger adults. Movement is primarily affected and may include symptoms such as tremors, stiffness, slowness of movement and difficulty with gait and balance. Other symptoms vary and may include gastrointestinal symptoms, changes in sense of smell, sleep disturbances, behavior changes, depression, and challenges with cognition.
What is the cause of Parkinson’s?
The exact cause of Parkinson’s disease is still unknown. Researchers believe it is likely due to a combination of genetic and environmental factors. Some people may have a family history of Parkinson’s, but for many, there is no definitive genetic link. Certain environmental exposures, like toxins, might increase the risk, but it’s important to know that Parkinson’s is complex, and no single cause has been identified.
What are the early signs of Parkinson’s?
Diagnosing Parkinson’s involves a careful assessment by a neurologist, often specializing in movement disorders. There isn’t a single test for Parkinson’s; instead, the diagnosis is based on medical history, a review of symptoms and a neurological examination. In some cases, imaging tests may be used to rule out other conditions. Early diagnosis is important so that symptoms can be managed as soon as possible.
What are the stages of Parkinson’s?
Parkinson’s disease is typically divided into five stages, each reflecting the progression of symptoms.
- Stage 1: Mild symptoms on one side of the body that don’t interfere much with daily life, such as a slight tremor or changes in posture.
- Stage 2: Symptoms become more noticeable, with symptoms on both sides of the body, but daily activities can still be managed.
- Stage 3: Balance issues and slower movements appear, increasing the risk of falls. Daily tasks become more challenging.
- Stage 4: Symptoms become more severe, requiring assistance with daily activities. Walking and movement are significantly impaired.
- Stage 5: The most advanced stage, where symptoms are severe, and the person may need full-time care. Mobility is often limited, and a wheelchair may be necessary.
What treatment options are available for Parkinson’s?
While there is no cure for Parkinson’s, there are many treatments available to help manage the disorder. Medications, such as levodopa, can help control symptoms, especially those affecting movement. Physical therapy, occupational therapy and speech therapy are also important for maintaining mobility and function. In some cases, surgical options like deep brain stimulation may be recommended. Staying active, maintaining a healthy diet and staying engaged in activities and in your community make a big difference.
What are some common myths or misconceptions about Parkinson’s?
There are several misconceptions about Parkinson’s disease. One common myth is that the disorder only affects older people, but Parkinson’s can affect adults of any age. Another misconception is that tremors are the only symptom, while in reality, Parkinson’s can also cause stiffness, balance issues, swallowing and voice concerns, and changes in mood and cognition. Lastly, it’s often believed that Parkinson’s is fatal; however, while it’s a serious condition, it’s not usually the direct cause of death. Many people with Parkinson’s live long, fulfilling lives with the right treatment and support.
You Took the First Step—Now It’s Time to Move!
We believe that exercise is one of the most powerful tools for living well with Parkinson’s. As our co-founder shares, “Exercise has proven to be one of the most effective means of slowing the progression of PD. For me, a mix of boxing, core, and balance work has been the most effective—and consistency, five days a week, has made a real difference.” Everyone’s needs are different, and finding the right routine comes down to personal interests, goals, and energy levels.
Explore below to see why exercise helps, what works for you, and how to begin safely.
Benefits of Exercise for PD
Regular exercise is one of the most powerful tools for managing Parkinson’s. Research shows it can improve balance, flexibility, posture, and overall mobility. It can also slow the progression of motor symptoms, reduce stiffness, and help with mood and cognition. Beyond the physical benefits, exercise offers a sense of empowerment and control over your health and well-being.
Finding the Right Exercise Routine
There’s no one-size-fits-all approach. The best routine is one you enjoy and can stick with consistently. Whether it’s boxing, walking, cycling, dancing, strength training, yoga, or cardio-based workouts, variety is key. A balanced mix of aerobic (cardio), strength, flexibility, and balance training is recommended. You can explore programs tailored specifically for Parkinson’s or modify existing classes with guidance from trained instructors.
Starting Exercise Safely
Before beginning any new fitness program, consult with your doctor or a physical therapist familiar with Parkinson’s. Start slow, listen to your body, and focus on proper form over intensity. At the Parkinson’s Wellness Foundation, we offer Parkinson’s-specific classes led by trained professionals who understand your unique needs. Whether you’re trying our signature fitness classes, enrichment classes, or Dance for PD, our programs are designed to help you move confidently and safely. You don’t have to do it alone—our team is here to support you every step of the way.
